Hi everybody!

I have a favor to ask.

So, January 4th is Unofficial Hypotonia Awareness Day (as far as I know there is no official day, this is the only hypotonia awareness day I've heard of). I was wondering... because hypotonia is not very well-known, would you guys be willing to maybe wear pink, green, and blue (the colors of the hypotonia awareness ribbon) on January 4th? And maybe you can explain hypotonia to people? (I'll be putting info about hypotonia in this discussion.)

Thanks :)

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Also, this is a website started by teen who has hypotonia. Her name is Elizabeth and she chose January 4th as Unofficial Hypotonia Awareness Day: http://hypotoniaawareness.com/hypotonia-blog/why-we-chose-january-4th-as-unofficial-hypotonia-awareness-day

 

Basic Explanation of Hypotonia/Low Muscle Tone (involving rubber bands)

Hypotonia (also know as low muscle tone) is when muscles have less tension in them than regularly toned muscles. Imagine you have a rubber band. Stretch the rubber band. It's just as tight as it should be. But if you have a floppy rubber band, and try to pull it tight, it doesn't get very tight. It sort of stays loose. Regular rubber band = regular muscle tone. Floppy rubber band = low muscle tone. Hypotonia doesn't mean the muscles are weak, just toned lower.

More Info on Hypotonia/Low Muscle Tone

  • Hypotonia is caused when the brain doesn't send messages to the muscles telling them to tighten properly
  • Hypotonia makes doing both fine and gross motor skills difficult
  • Hypotonia is often a "symptom" of another disorder -- such as Down syndrome or cerebral palsy -- but there is also a type of hypotonia called benign congenital hypotonia, which is just hypotonia
  • The hypotonia motto is One Inchstone at a Time

 

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Replies

  • This is so cool! I'm so sorry I missed it.
    • Me too! I am newish and this is the first time I've looked at Luna. I'll make a mental note to do it next year!
  • Thank you to all of you who wore the colors today <333 you have no idea how much it means to me
  • I'll try! I'm going to a musical, so I'll probably have to change out of it and into something nicer :( But maybe! And I'll definitely explain it! Thanks for talking about it!!!
  • I will try to wear the colors, I'm only going to the dentist so not many people will notice but I'll try.
  • Mod S2S Mentor
    oof I can't really wear the colors because I go to synagogue Saturday morning for Shabbat services and non of my more formal stuff has that color.
  • I'll definitely wear the colors that day! I didn't even know it existed, sadly, so spreading the word is needed. :)
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